BOSTON--(BUSINESS WIRE)--Cambridge BioMarketing, an Ashfield company, part of UDG Healthcare plc and the world’s leading rare disease agency, will project portraits of patients living with rare diseases on the side of Boston City Hall this Thursday, Feb. 28, Rare Disease Day, starting at 6 p.m. ET as part of its #FacesOfRare campaign. The installation, which features portraits of five patients living with conditions including hemophilia, HAE, FCS, lipodystrophy, and Morquio A, shares the patient perspective of living with a rare disease.
“Bringing these patients’ stories and voices forward is a critical step toward educating the public about the daily experience of people living with a rare disease,” said Maureen Franco, CEO, Cambridge BioMarketing. “These images depict strong, confident individuals who have overcome tremendous obstacles, and we are amazed by their bravery and willingness to tackle issues head on. By putting a face to the rare disease community in the middle of Boston, we’re proud to raise awareness of their journey, play a part in connecting them with transformational, potentially life-saving medicines, as well as serve as an advocate for the community at large.”
One of the patients in the showcase is Arista, a 28-year-old twin, fiancé and friend living with hereditary angioedema (HAE), which brings on unpredictable swelling attacks. She first learned of her diagnosis through her twin sister who was diagnosed first. Arista remains positive and supportive of her twin sister through their shared disease, while she looks forward to her wedding later this year.
Visit facesofrare.com for full-length patient profiles and to hear stories from those affected by rare disease.
About Cambridge BioMarketing
Founded in 2001, Cambridge
BioMarketing is a U.S.-based communications agency specializing in rare
orphan diseases with over 100 employees. Headquartered in Boston, MA
with offices in Oakland, CA, Cambridge BioMarketing is an industry
leader in orphan drug launches, advising pharmaceutical companies with
an integrated focus on both traditional healthcare professional (HCP)
programs and direct-to-patient work. In partnering with predominantly
pharmaceutical and biotech customers, the agency’s goal is to bring
physicians, specialists, and patient communities together on behalf of
clients to transform human health in the face of
devastating, under-appreciated disease states. Cambridge BioMarketing’s
primary service offerings include: launch readiness support; digital
strategy; market analytics; integrated marketing; patient identification
and acquisition; medical affairs support; line extensions and patient
retention and adherence programs. For more information, please go to: http://cambridgebmg.com/
About Ashfield:
Ashfield, part of UDG Healthcare plc, is a
global leader in commercialisation services for the healthcare industry.
We partner with our clients across Advisory, Healthcare Communications,
Commercial, Patient Solutions and Medical Affairs to build creative,
scalable and tailored health solutions that are executed flawlessly, to
address our client’s challenges and deliver positive outcomes for
patients. With 7,000 employees, the company operates in 25 countries,
delivering services in more than 50 countries across Europe, North
America, South America and Asia. It works with more than 250 businesses,
including all of the world’s top 25 pharmaceutical companies. Its
mission is to partner with its clients, helping to improve lives by
ensuring healthcare professionals and patients get the medicines,
knowledge and support they need. Ashfield provides strategic consulting,
audit, advisory, healthcare communications, field and contact centre
sales teams, in-home and contact centre clinical educators, medical
information, pharmacovigilance (drug safety) and event management
services. For more information, go to www.ashfieldhealthcare.com.
