CAMBRIDGE, Mass.--(BUSINESS WIRE)--Cambridge BioMarketing, the world’s leading rare disease and specialty market agency, will premiere Rare in Common, a film project honoring people living with the challenges of a rare disease, on Rare Disease Day at the Landmark Kendall Square in Cambridge, MA.
On Feb. 29, 2016, 87 countries will celebrate Rare Disease Day to recognize the critical role patients and their caregivers play in calling attention to the public health issues associated with rare diseases, which affect 25-30 million people in the United States and approximately 30 million people in the European Union. One in 10 Americans is living with a rare disease, and approximately 7,000 rare disorders are in existence, with new ones discovered each year, according to research compiled by Global Genes™.
The complex nature of rare diseases, coupled with limited access to treatment and services, means that family members are often the primary source of solidarity, support, and care for their loved ones. Patients with rare diseases—and those who care for them—share a common bond: they are enormously courageous individuals. Cambridge BioMarketing is showing its support by launching Rare in Common, a film project celebrating the lives of inspiring people in the rare community and giving them a forum to showcase their unique stories.
“Part of our focus at Cambridge BioMarketing is on building cohesive patient-physician communities around effective treatments for rare diseases and connecting them with transformational, potentially life-saving medicines,” said Maureen Franco, CEO, Cambridge BioMarketing. “Rare Disease Day is naturally a cause very close to our hearts. People with these conditions have amazing stories to tell but often struggle to be heard, so we kicked off this ambitious film project last year to compile patient stories into a compelling narrative to share with the world. The goal is simple: shine the spotlight on the people impacted by rare diseases and celebrate their commonalities.”
Read below for more information about the Rare in Common film premiere and reception, which will feature patients and caregivers.
|
WHO: |
Cambridge BioMarketing | |
|
WHAT: |
Rare in Common film premiere |
|
|
WHEN: |
Monday, Feb. 29, 2016; 6:30 p.m., EST | |
|
SCHEDULE: |
Film Screening: 6:30-7:30 p.m., EST |
|
|
Reception: 8-9:30 p.m., EST (light fare, beverages) |
||
|
WHERE: |
Film Premiere: Landmark Kendall Square (355 Binney Street, Cambridge, MA) |
|
|
Reception: Cambridge BioMarketing (Lobby – 245 First Street, Cambridge, MA) |
||
|
WEBSITE: |
||
About Cambridge BioMarketing
Cambridge BioMarketing is a rare disease and specialty market agency, blending medical insights and award-winning creativity with deep experience to build some of the world’s most successful brands. With solutions for our clients that empower, educate, and activate, we bring physicians, specialists, and patient communities together to transform human health in the face of devastating, under-appreciated disease states. Founded in 2001, Cambridge BioMarketing is headquartered in Cambridge, MA, and is a division of Everyday Health, Inc. For more information, visit: www.cambridgebmg.com.
