CAMBRIDGE, Mass.--(BUSINESS WIRE)--The March episode of Openly Rare with Paul Kidwell, a monthly podcast series dedicated to the discussion around rare diseases, features a recording of a panel discussion that took place during the annual International Rare Disease Day event that is sponsored by the Massachusetts Biotechnology Council. The panel, which was titled “Supporting Patient Well-being Beyond Outcomes,” featured three patient spokespeople and was moderated by Paul Kidwell. Patient panelist included: Austin Leclaire, Keisha Greaves, and Lisa Deck.
Today’s podcast and all future episodes can be found here:
About Openly Rare with Paul Kidwell
Openly Rare with Paul Kidwell is a monthly podcast covering all aspects of rare diseases and will feature conversations with newsmakers and leaders from the world of biomedical and academic research, patient engagement, caregiving, rare disease patients and their families, as well as others who in some way have been touched by the growing number of rare illnesses. The podcasts will cover a range of topics, including research and treatment, the business and science of rare disease drug development, patient storytelling, policy debates and the cultural impact of rare diseases.
To learn more about Paul Kidwell and to hear the Openly Rare podcast, go to paulkidwell.com. You can also listen to the Openly Rare podcast on Apple Podcasts, Google Podcasts, Stitcher, TuneIn, Spotify and with all Android players.