ALISO VIEJO, Calif.--(BUSINESS WIRE)--Global Genes, a leading rare disease patient advocacy organization, today announced the launch of its inaugural RARE Entrepreneurial Development & Incubation (REDI) Initiative. The REDI Initiative serves as a continuum of events, mentorship, training and visibility designed to support budding leaders in the rare disease community as they, often out of necessity, take on drug discovery and development in rare diseases.
“There are more than 10,000 rare diseases worldwide, more than 95% of which have no approved treatment,” said Craig Martin, CEO of Global Genes. “For many patients, caregivers and advocates, the burden to generate interest, funding and progress toward treatments fall squarely and solely on their shoulders – which is driving an increasing number of caregivers and advocates to become drug developers.”
To prepare emerging rare disease entrepreneurs to navigate through the complexities of various stages of drug development, financing, partnering and commercialization, the REDI initiative will provide participants with training, mentorship, networking opportunities and access to Global Genes event programming and resources geared toward entrepreneurship.
“Through the REDI Initiative, we aim to arm advocates and early-stage entrepreneurs with the tools and guidance to generate and sustain more productive and successful opportunities to develop therapeutic solutions. By combining our expertise and network, we accelerate and expand innovation and build momentum for the entire rare disease ecosystem,” noted Martin.
For more information on participating, email REDI@globalgenes.org.
Global Genes is accepting sponsors and partners for the REDI program. To learn more, see the REDI sponsorship prospectus here.
About Global Genes
Global Genes is a 501(c)(3) non-profit organization dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally. In pursuit of our mission, we connect, empower, and inspire the rare disease community to stand up, stand out, and become more effective on their own behalf — helping to spur innovation, meet essential needs, build capacity and knowledge, and drive progress within and across rare diseases. We serve the more than 400 million people around the globe and nearly one in 10 Americans affected by rare diseases. If you or someone you love has a rare disease or are searching for a diagnosis, contact Global Genes at 949-248-RARE or visit our Resource Hub.