Amylyx Supports Rare Disease Day® and #ShowYourStripes Campaign to Raise Awareness for Rare Disease Communities

#ShowYourStripes In Community Solidarity by Using New Facebook Filter or Downloadable Video Conferencing Background

CAMBRIDGE, Mass.--()--Amylyx Pharmaceuticals, Inc., a pharmaceutical company focused on developing new treatments for amyotrophic lateral sclerosis (ALS), Alzheimer’s Disease and other neurodegenerative diseases, has joined forces with the National Organization for Rare Disorders (NORD®) to help raise awareness for this year’s Rare Disease Day® on February 28th. Rare Disease Day is an annual awareness day dedicated to elevating public understanding of rare diseases and emphasizing the special challenges the community faces.

Amylyx is honored to be a Rare Disease Day “Campaign Supporter” and participate in NORD’s #ShowYourStripes campaign, which aims to empower advocates, educate policymakers and engage and inform the general public about rare diseases. Amylyx is dedicated to improving the lives of patients and families affected by rare diseases such as ALS and Wolfram syndrome. In support of this year’s Rare Disease Day, Amylyx created a custom Facebook filter and a background for video conferencing platforms to encourage conversation and help raise awareness for the millions of people across the globe who live with a rare disease. Join Amylyx and participate in this year’s #ShowYourStripes campaign, use the Facebook filter and download a unique video conferencing background to show support during virtual meetings:

  • Facebook Filter
  • Video Conferencing Background [see downloadable graphic above]

“We believe that the strength of togetherness and passion of humanity can lead to brighter days for those living with rare diseases. Amylyx is a proud participant in Rare Disease Day, and I’ll be using the filter we created to show support for the millions of people who are affected by these terrible diseases,” said Co-CEO, Chairman and Co-Founder Joshua Cohen.

“Every day, these courageous families face unimaginable hardships and continue to advocate for themselves and others. We hope everyone will take this opportunity to learn more about rare diseases and show support for this community,” added Co-CEO and Co-Founder, Justin Klee.

Amylyx encourages everyone to share their rare disease experiences and/or support for these disease communities on social media through stories, poems, drawings, photos, words of hope, etc. You could make an impact by sharing this filter and video conferencing background with others, and be sure to use #ShowYourStripes and #RareDiseaseDay in your social media posts. Amylyx’ Zebra stripe filter will be available through March 5th.

For a full listing of Rare Disease Day activities, visit rarediseaseday.us.

About Rare Disease Day

Rare Disease Day takes place every year on the last day of February—the rarest date on the calendar—to underscore the nature of rare diseases and what patients face. It was established in Europe in 2008 by EURORDIS, the organization representing rare disease patients in Europe, and is now observed in more than 80 nations. Rare Disease Day is sponsored in the US by the National Organization for Rare Disorders (NORD®), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare diseases. The core message of NORD’s “Show Your Stripes” campaign is to wear stripes on Rare Disease Day to raise awareness and show support for those living with rare diseases.

For more information about Rare Disease Day in the US or “Show Your Stripes®,” go to rarediseaseday.us. For information about global activities, go to rarediseaseday.org. To search for information about rare diseases, visit NORD’s website, rarediseases.org.

About Amylyx Pharmaceuticals

Amylyx Pharmaceuticals, Inc. is a pharmaceutical company working on developing a novel therapeutic for amyotrophic lateral sclerosis (ALS), Alzheimer’s disease and other neurodegenerative diseases. For more information, visit www.amylyx.com and follow us on LinkedIn and Twitter.

Contacts

Media:
Merissa Muller
Finn Partners
(617) 778-6633
Merissa.Muller@finnpartners.com

Release Summary

Amylyx has joined forces with NORD® to help raise awareness for this year’s Rare Disease Day® on February 28th.

Contacts

Media:
Merissa Muller
Finn Partners
(617) 778-6633
Merissa.Muller@finnpartners.com