Two Dads Team Up Against 7,000 Rare Diseases for DISORDER: The Rare Disease Film Festival

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Two Dads Team Up Against 7,000 Rare Diseases for DISORDER: The Rare Disease Film Festival

SAN FRANCISCO--()--Disorder: The Rare Disease Film Festival will bring together patients, advocates, and industry at Mission Bay Conference Center, San Francisco, CA, on November 9 and 10, 2019. The festival showcases films from around the world that address the challenges of life with a rare disease. It aims to increase awareness of these diseases among not only the general public but medical researchers and industry as well.

The festival's organizers and co-founders are Daniel DeFabio and Bo Bigelow, two fathers of children with ultra-rare genetic disorders, Menkes Disease and USP7. They have chosen 54 films dealing with some aspect of the 7,000 rare diseases, which affect 1 in 10 Americans. "We couldn't be more energized by the enormous response from filmmakers all over the world who are sharing these powerful rare-disease stories," said Bigelow. “We're so glad to have not just documentaries this year, but fictional films, animated films, even a comedy or two,” said DeFabio. Some films are the first to be made about their subject disease, such as Jon Dorflinger's film "Unconditional," which deals with an ultra-rare neurodevelopmental disease called PACS1.

The festival will also bring back 13 of its most popular selections from their last event, which took place in Boston, MA in fall 2017.

Tickets for the festival are now on sale at the event's website.

The festival's goal is to promote collaborations among rare-disease stakeholders in order to reach cures and treatments. Between many of the film screenings, rare disease researchers and patient advocates will also share stories from their experiences. These discussions have been shown to spark new thinking towards translation applications of current treatments and inspire avenues for new research. Additionally, many filmmakers attending the festival will have an opportunity to participate in questions and answers with the audience following the presentation of their films.

Disorder's founders are glad to have support from some of the leading organizations in rare advocacy—NORD, Beyond the Diagnosis, CheckRare and Global Genes—as well as several leading orphan drug companies including Premier Research, Sanofi Genzyme, Horizon, and Takeda.

More information on the festival can be found here: www.rarediseasefilmfestival.com.

Photos are available to the press on request.

Contacts

Daniel DeFabio
daniel@rarediseasefilmfestival.com
518-309-4970

Release Summary

Disorder: The Rare Disease Film Festival will take place at Mission Bay Conference Center, San Francisco, CA, on Nov. 9 and 10, with over 50 films.

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Contacts

Daniel DeFabio
daniel@rarediseasefilmfestival.com
518-309-4970