Cystic Fibrosis Advocates Convene on Capitol Hill to Mark Launch of Senate CF Caucus and Teen Advocacy Day

Teens from 33 States Urge Legislators to Join the Fight against Cystic Fibrosis

--()--Cystic Fibrosis Foundation:

The Cystic Fibrosis Foundation will convene on Capitol Hill to mark the formation of the Senate Cystic Fibrosis Caucus during its eighth annual Teen Advocacy Day. The Senate CF Caucus will expand support for the CF community in Congress, furthering its ability to pursue policy goals that advance research, drug discovery and development and access to high-quality, specialized care.

 

WHAT:

The Senate CF Caucus launch event will be organized as a “mock hearing” introduced by caucus co-chairs Senators Edward Markey (D-Mass.) and Charles Grassley (R-Iowa). A panel of members from the CF community will provide testimony on living with the disease, recent advancements in treatments and care, and CF research and science.
 
This event will take place during the CF Foundation’s annual Teen Advocacy Day, which brings more than 75 teens from 33 states to Washington, D.C., to meet with their Congressional leaders and advocate on behalf of their loved ones with CF.
 

WHEN:

Thursday, June 23, 2016
Noon to 1 p.m.
 

WHERE:

902 Hart Senate Office Building
 

WHO:

Panelists include:

• Mara Cray, a young adult with CF

• Erin Baranko, CF advocate and CF Foundation intern

• Joe O’Donnell, CF advocate and parent

• Preston W. Campbell, III, M.D., president and CEO of the CF Foundation

 

For more information or press registration, please contact Laurie Fink, national director of media relations at (301) 841-2602 or lfink@cff.org.

About the Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation is the world's leader in the search for a cure for cystic fibrosis. The Foundation funds more cystic fibrosis research than any other organization, and nearly every CF drug available today was made possible in part through Foundation support. Based in Bethesda, Md., the Foundation also supports and accredits a national care center network that has been recognized by the National Institutes of Health as a model of care for a chronic disease. The Cystic Fibrosis Foundation is a donor-supported nonprofit organization. For more information, go to www.cff.org.

Contacts

Cystic Fibrosis Foundation
Laurie Fink, 301-841-2602
National Director of Media Relations
lfink@cff.org

Contacts

Cystic Fibrosis Foundation
Laurie Fink, 301-841-2602
National Director of Media Relations
lfink@cff.org