BOSTON--(BUSINESS WIRE)--The Hypersomnia Foundation, Inc., the leading hypersomnia advocacy and awareness non-profit, announces their annual Regional Conference, to be held Sunday, June 4th in Boston. The conference will embrace the theme of “Advocacy & Empowerment.” Speakers will address various challenges for people with idiopathic hypersomnia (IH), a chronic, neurological sleep disorder.
People with IH have an overwhelming need for sleep throughout the day, affecting their ability to concentrate. They have extreme difficulty waking, and a full night’s sleep makes no difference to these symptoms. The disorder makes it extremely challenging for people with IH to hold down jobs, remain in school, maintain marriages and fully engage with their family and friends. In a society where feeling “tired” is a common complaint, sufferers are often labelled “unmotivated” or “lazy.” It is not uncommon for people to struggle for years to cope on their own and for many, just getting a diagnosis of IH from a Board Certified Sleep Physician is a relief.
Conference topics will include “Staying Ahead of IH at Work,” presented by disability attorney Anjel Burgess, who notes that too often, people with IH are unsure what to do when their hypersomnia begins to affect them on the job. Ms. Burgess, who has represented numerous people with IH in her home state of Georgia, will share her recommendations.
Stanford clinical psychologist/sleep researcher Kate Kaplan will address how psychotherapy can improve overall quality of life for people with hypersomnia. HF Board member Mary King, Ed.D will moderate a panel on education challenges. The panel will include two students with hypersomnia, who will share how they successfully navigated college.
Dr. Lynn Marie Trotti of Emory University Sleep Center will provide an annual update of research, and a review of what we are learning from the patient registry established by the Hypersomnia Foundation in 2016.
The conference will be held in Rabb Lecture Hall, Boston Public Library, June 4th, 12:30-4:30pm ET, and may be viewed online, free. For more: http://www.hypersomniafoundation.org/2017hfrc/.
About Hypersomnia Foundation
The Hypersomnia Foundation, Inc. strives to improve the lives of people with idiopathic hypersomnia and related disorders by advocating on their behalf, providing support and information, raising awareness and aiding research. For more: http://www.hypersomniafoundation.org/ and follow us on Twitter and Facebook. Let’s Get #BeyondSleepy #HFconf